Chronic/SeriousMental_Illness

What to do, “When Mental Illness Enters the Family”

gail louise Chronic/SeriousMental_Illness, Learning to Hope, Loyd Sederer, MD, On Support, These Illnesses , , , , ,

What do we do now, now that mental illness has entered our family?  Dr. Lloyd Sederer’s video “When Mental Illness Enters the Family”  is a Godsend. In this short, 15-minute video, Dr. Sederer addresses family members of people with mental illnesses and gives them clear and doable tips on how to live harmoniously (mostly) and wisely (usually) with the ill family member. His four main steps to cope with the effects of mental illness are right on target.  I can write this because of the lived experience I have had with two members of my family of origin. One person is still living, a sibling,  and  I work to understand better how to provide this person true support and health needs in an integrated manner without sacrificing my health in the process. The recommendations in “When mental illness enters the family” are a good beginning for people starting out on that road – Helping to care for someone with mental illness – as well as a good review for experienced family members.

Dr Sederer is a psychiatrist who is the medical director of the New York State Office of Mental Health –, i.e., Chief psychiatrist for the nation’s largest state mental health organization. He was the  medical director and executive vice president of Harvard-affiliated McLean Hospital in Massachusetts. He is also the mental health editor and columnist for The Huffington Post.

I also heartily recommend readers who have a mental health condition and family members of people with a mental health problem explore NAMI’s (National Alliance on Mental Illness) website for all the valuable resources and information that are gathered there.

As I worked and volunteered for NAMI on the state and local level for many years (20) here in Wisconsin, I will post a resource article with thoughts about the NAMI website and programs soon.

Real Depression; Real Men: “Because you have to deal with it. It doesn’t just go away.”

gail louise MajorDepression, On Suicide, On Support, Real Life; Real Challenges, These Illnesses , , , , , , ,

This post’s title is taken from a video clip “Real Men, Real Depression” featuring Patrick McCathern, 1st Sergeant, US Air Force, Retired, and available here on The National Institute of Mental Health’s website.

Depression in Men often manifests itself differently. What ails men may not be recognized by them or their family or friends as depression. It may be mistaken as a sleeping problem or a digestive problem … or a character flaw. When a man has depression he has trouble with everyday life and loses interest in anything for weeks at a time.) He may be irritable, feel very tired, and lose interest in his work, family, or hobbies.

The tricky part of depression in men: They may not want to recognize, talk about, or acknowledge “it” or how they are feeling. (Please see my entry on Male Depression under These Illnesses in the menu section of my website for life experiences with my father’s depression.)

The quiet truth about depression is that it is very, very painful, and unending. And although women with depression more often attempt suicide, men are more likely to die by suicide.

HOW CAN I HELP A MAN WHO IS DEPRESSED? (Recommendations from The National Institute of Mental Health):

  • Offer him support, understanding and encouragement. Be patient.
  • Talk to him, but be sure to listen carefully.
  • Never ignore comments about suicide, and report them to his therapist or doctor.
  • Invite him out for walks, outings and other activities. If he says no, keep trying, but don’t push.
  • Encourage him to report any concerns about medications to his health care provider.
  • Ensure that he get to his doctor’s appointments.
  • Remind him that with time and treatment, the depression will lift.

MEN WITH DEPRESSION ARE AT RISK FOR SUICIDE. IF YOU, OR SOMEONE YOU KNOW IS IN CRISIS GET HELP QUICKLY.

Call your doctor or 911 for emergency services.

Call the toll-free, 24-hour lifeline, National Suicide Prevention Lifeline

1-800-273-TALK (1-800-273-8255)                  TTY: 1-800-799-4TTY (1-800-799-4889

On Healing and the Caring Community

gail louise Beyond Recovery to Healing, Chronic/SeriousMental_Illness, homelessness, On Support, Rev Craig Rennebohm , , , , , , , , , , ,

Recently I have been re-searching the book, Souls in the Hands of a Tender God: Stories of the Search for Home and Healing on the Streets for more wisdom.

The book’s author is Rev. Craig Rennebohm, founder of the Mental Health Chaplaincy  in Seattle, WA. This UCC minister speaks of the illness experience and how healing can occur even with serious illness. He places the experience of illness in perspective with many other factors in life. He writes,”…. Our illness self, may predominate at any given moment, but is not absolute and does not determine finally who we are. An illness, no matter how grave, is but a part of our larger identity; our wholeness as persons encompass the moment of illness and far more.”

I first heard him speak at the 2013 NAMI (National Alliance on Mental Illness) annual convention held in Seattle that year. I learned although there is no cure for mental illness but there is recovery for many, that I am experiencing healing “…within a larger frame of personal growth and caring community” as the next stage in my recovery.  Continue Reading more on his profound message.

Stubborn Hope

gail louise Beyond Recovery to Healing, Chronic/SeriousMental_Illness, Learning to Hope, On Support, Stubborn Hope , , , , , , ,

Endurance is a passive quality,
transforms nothing, contests nothing,
can change no state to something better
and is worthy of no high esteem;
and so it seems to me my own
     persistence
deserves, if not contempt, impatience.

Yet somewhere lingers the stubborn hope
thus to endure can be a kind of fight,
preserve some value, assert some faith
and even have a kind of worth.

—Dennis Brutus, former prisoner of conscience, South Africa
From Stubborn Hope, c1978 Heinemann Educational Books, Inc., Portsmouth, NH.

I have two sets of tools to use in managing my illness. One set consists of the familiar: support of friends, family, the members of my support group, my psychiatrist, plus therapy, medication, rest, exercise, use of behavioral and cognitive techniques and calm, quiet settings.

The second set is much more personal. These “tools” are experiences in my life that provide comfort when treatment isn’t effective. I list them on a set of index cards that are always ready at hand. When I’m having trouble with obsessive negative thoughts, despair, and grinding hopelessness I read through the cards individually, with care and consideration. Most cards list a single word:

“Music,” stirring music.

“Humor.” I cannot generate humor, but at some level it reaches me.

“Beauty.” Something beautiful must be near at hand. Usually it is light falling on my favorite glass vase, an illustration, or a textured fabric. My eyes and mind are soothed. Vibrant colors stop ruminating thoughts and bring peace, a dramatic although brief period of relief.

“Favorite books.” They are important as reminders of the admiration I have for the author’s intellect and talent. Virtuosity stimulates my constricted mind.

The last index card, however, cuts to the quick; sometimes there is no comfort. This card reads, “And some times, only endurance.” Years ago I wrote that phrase with a bitter heart. But since then, I have come to agree with Dennis Brutus. Endurance has value and relies on faith, albeit unrecognized by me. It reflects a stubborn hope, for tomorrow and the tomorrows to follow.

Greetings to you and to those you love and support.

On Healing…Learning to Hope despite Chronic Mental Illness

gail louise Chronic/SeriousMental_Illness, Learning to Hope , , , , , ,

Do you or someone you love have a chronic illness? The illness and the very real struggle to stand with the person suffering from the illness can be awfully hard to bear. What’s it like for you? I have written about my chronic illness experience. Go visit the menu option On Healing and scroll down. You’ll find my essay: Learning to Hope Despite Chronic Mental Illness. Learning to hope again and learning to believe that life will again have genuine promise were sweet rewards of my patient examination of what life had been and what life could be. I started with one small but tangible bit of “up” time. The time occurred “before my very eyes” as it were. It was what I most hoped for, so I built nurturing memories on it.  I hope yours will be also.

Please read on………………………….

Offering True Support

gail louise Chronic/SeriousMental_Illness, Giving and Receiving Support, On Support, Parenting , , , , , , , ,

Most of us have found ourselves, at one time or another, wanting to provide a friend or relative with a listening ear… or to be a helpful sounding board; in other words, to provide support. What is present when someone is offering true support?

True support is present when the recipient feels listened to and understood. Some emotional needs have been shared and supported together. Just listening well and empathically may help someone clarify options or sort out thoughts. If you’re unsure if the support you offer is satisfactory and your intention is genuine, I suggest asking the recipient gently: Did she feel really listened to? Did he feel a lifting, even temporarily, of a burden? If yes, you have given someone a great gift!

My experience as a support group facilitator and as a trainer of facilitators, both in giving and in receiving support from people with mental illness through an adult lifetime guide me to these recommendations (Under “On Healing” in the menu bar). I hope you find them thoughtful.

Oh So Real: Pregnancy and Suicidal Depression

gail louise Depression during Pregnancy, MajorDepression, On Support, Parenting , , , , , , , , , , ,

“Oh baby,” I said, as he/she came down the birth canal, “You are born!”. It was 1979. We didn’t know the sex of the child before birth. The birthing experience was wonderful, a balm for the difficult pregnancy caused by the onset of major depression in the fourth month of pregnancy.

I was alone.

Don’t get me wrong, my husband was with me very much during the pregnancy. But I was alone with being pregnant and being ill. I knew no other woman who was or had been pregnant and seriously depressed to talk to, to compare notes, to help me express my feelings or to hug. I hope this summary of my story of the difficult pregnancy will help other mothers who find themselves struggling with similar experiences today.

If you are pregnant and depressed, you are Not alone.

People with mental illness want to succeed as parents

gail louise Chronic/SeriousMental_Illness, MajorDepression, Parenting, Real Life; Real Challenges , ,

Parenting. I know that when my son was born, and I had serious depression, I was overwhelmed by the thought of taking care of a newborn, the rest of the family, the home, meals, …..the whole shebang. No one in my health care team thought of arranging for assistance for me or even meeting with me. My extended family assumed once the baby was born the depression would correct itself and, with the joy of the new baby, I would manage fine.

Actually the terror of my anxiety level worsened. I was sure I would do things wrong. The depression worsened.

My children are now ages 35 and 40. They are well and we are doing well with each other. I couldn’t be more blessed as a parent. In fact, now I am a Grandparent to two children, a boy and girl who are 5 and 9. Their birthdays are coming up and celebrating grandchildren’s birthdays  is an awful lot of fun!

I’ll discuss some things I would have done differently when my children were born in a second post.

Parenting, continued….

gail louise MajorDepression, On Support, Parenting, Real Life; Real Challenges , , , , , , , , , ,

Raising children, for me, while taking care of my own mental illness, was a double challenge. I was a parent before major depression, and later Bipolar Disorder II, evolved. My article on parenting (in the menus above under “Real Life, Real Challenges”) was written several years ago but this post gives me the opportunity to add to my observations.
Support should be given to them every step of the way, as needed, per individual. We love our children and want to do the best for them. Support during pregnancy check-ups; assistance at hand, if wanted, when the baby is about to be born; coordinated discharge planning when mother and baby are leaving for home; weekly in-home visits, etc.

With that in mind, here are some things I would do differently if I had the opportunity:

  • I would be less critical of family members. In fact, I think that some parenting classes can be suggested to parents with mental illness ( we’d learn the program and we’d all learn from each other) Stress techniques that would teach how to do positive reinforcement so the parent with depression/mental illness has some tools to use.
  • I would teach my children at an earlier age, in simple terms, that I had an illness and that sometimes I needed the house to be extra quiet and I had to nap because I wasn’t feeling well.
  • I/we would teach that the illness and bad feelings that I had were not the children’s fault, nor anyone’s fault.

More “First Things First” – Half the cigarettes in America

gail louise Chronic/SeriousMental_Illness, More First Things, Real Life; Real Challenges , , , ,

AODA/mental health patients smoke half the cigarettes in America. They’re dying from it. Most want to quit. Many have tried. For example: www.HelpUsQuit.org. My story is available here, on my website, and I’ll be writing more about the Center for Tobacco Research and the problems associated with smoking and mental illness shortly. . .

The facts are startling: 50% of people with persistent mental illness smoke compared to 18% of the general population; they consume 40% of all cigarettes smoked. The result is 200,000 deaths of  individuals with mental illness in the US  per year from smoking. The average lost years of life spans 20 -24 years! That is right, people with mental illness who smoke, as a group, live 20 – 24 fewer years than the general non-smoking population.  You can view this and more great information at the Center for Tobacco Research & Intervention, University of Wisconsin School of Medicine and Public Health, Madison.