No fault; no blame

It’s a fine Spring afternoon; I’m sitting at my desk writing, and a memory of my early encounter with a profound message rises: Somehow, somewhere, back in 1992, I believe – I found my first NAMI Dane County newsletter. That’s not important. What is important was the written message it contained.

I believe it was the newsletter’s “From the President’s Desk” column that encouraged me to learn more about NAMI (the National Alliance on Mental Illness). The column reflected an understanding of biologically based mental illness that I had not found before, and an understanding, not only of my illness experience, but more importantly for me an understanding of my father’s illness and my family’s response to that illness. It was a strong “no fault, no blame” grasp of the fundamentals of daily life with a serious disorder.

It was clear to me that the column’s author and others in NAMI knew and believed without question the conclusion that I had just encountered: The only way to view mental illnesses and brain disorders is without applying blame or fault.  Not to families.  Not to individuals.

Communities in Action to Prevent Suicide, part IV

Dr. Whiteside, concluding her keynote address to the Communities in Action to Prevent Suicide conference, April 2015, asked us to visit the websites below for a look at what suicide attempt survivors have to say for themselves.  Their words offer important insights.

www.livethroughthis.org is a wonderful and compelling collection of portraits each linked to a suicide attempt survivor story, as told by those survivors. LiveThroughThis shows through these remarkable stories that everyone is susceptible to depression and suicidal thoughts. It does this simply by showing portraits and stories of attempt survivors — profoundly sharing that they are people no different than you or I.

As the website’s author Dese’Rae L. Stage writes, “…these feelings could affect your mom, your partner, or your brother, and the fear of talking about it can be a killer.”

The second website attemptsurvivors.com  is a now-completed project of the American Association of Suicidology. This site also features attempt survivors who have spoken up and told their stories. This website’s editor taught me a valuable lesson also. She wrote that people continually ask survivors about suicidal thoughts and actions, saying “Why would you want to do that to yourself?” As she noted, this question represents a shocking and a fundamental misunderstanding. You see, as when inquiring about any potentially fatal health issue the question needs only be, “Why is this happening to people we love?”

Do you see the stark difference between these two questions? The first, intentionally or not, is accusatory and focuses on blaming the suicidal person. The second question reflects concern for the person and asks why it is that this has happened to this individual, without seeing the act as a personal fault — and in truth, suicide is usually the result of a mental illness process.

Thank you for reading and for hearing and listening to them.

To Tell or Not To Tell – Discussing self-disclosure

I’ve been reading summaries of research on stigma-busting that lay it on the line. Publishing facts about mental illness, as for example, how treatment helps people live successfully, does not assist in alleviating stigma. Highlighting the stories of people with mental illness who have achieved significant accomplishment, does not curb stigma either. What does work is for ordinary people to get to know ordinary people with mental illness personally! For stigma-busting and awareness and acceptance of mental illness to happen, individuals with mental illness need to be able to safely self-disclose or identify that they have received mental health treatment. Both peoples need to get acquainted and know each other. Nothing breaks down barriers like good communication. Acceptance and trust can be built up by direct experience of the other. But someone has to take the first step. Will it be you? Should it be?

I want to talk about the role of self-disclosure in advocating for people with mental illness. I am hoping to reach out to you especially if you have a mental illness yourself or are related to someone who lives with mental illness. [Continue reading the article under Real Life; Real Challenges]

Parenting, continued….

Raising children, for me, while taking care of my own mental illness, was a double challenge. I was a parent before major depression, and later Bipolar Disorder II, evolved. My article on parenting (in the menus above under “Real Life, Real Challenges”) was written several years ago but this post gives me the opportunity to add to my observations.
Support should be given to them every step of the way, as needed, per individual. We love our children and want to do the best for them. Support during pregnancy check-ups; assistance at hand, if wanted, when the baby is about to be born; coordinated discharge planning when mother and baby are leaving for home; weekly in-home visits, etc.

With that in mind, here are some things I would do differently if I had the opportunity:

  • I would be less critical of family members. In fact, I think that some parenting classes can be suggested to parents with mental illness ( we’d learn the program and we’d all learn from each other) Stress techniques that would teach how to do positive reinforcement so the parent with depression/mental illness has some tools to use.
  • I would teach my children at an earlier age, in simple terms, that I had an illness and that sometimes I needed the house to be extra quiet and I had to nap because I wasn’t feeling well.
  • I/we would teach that the illness and bad feelings that I had were not the children’s fault, nor anyone’s fault.