On Support

Stubborn Hope

gail louise Beyond Recovery to Healing, Chronic/SeriousMental_Illness, Learning to Hope, On Support, Stubborn Hope , , , , , , ,

Endurance is a passive quality,
transforms nothing, contests nothing,
can change no state to something better
and is worthy of no high esteem;
and so it seems to me my own
     persistence
deserves, if not contempt, impatience.

Yet somewhere lingers the stubborn hope
thus to endure can be a kind of fight,
preserve some value, assert some faith
and even have a kind of worth.

—Dennis Brutus, former prisoner of conscience, South Africa
From Stubborn Hope, c1978 Heinemann Educational Books, Inc., Portsmouth, NH.

I have two sets of tools to use in managing my illness. One set consists of the familiar: support of friends, family, the members of my support group, my psychiatrist, plus therapy, medication, rest, exercise, use of behavioral and cognitive techniques and calm, quiet settings.

The second set is much more personal. These “tools” are experiences in my life that provide comfort when treatment isn’t effective. I list them on a set of index cards that are always ready at hand. When I’m having trouble with obsessive negative thoughts, despair, and grinding hopelessness I read through the cards individually, with care and consideration. Most cards list a single word:

“Music,” stirring music.

“Humor.” I cannot generate humor, but at some level it reaches me.

“Beauty.” Something beautiful must be near at hand. Usually it is light falling on my favorite glass vase, an illustration, or a textured fabric. My eyes and mind are soothed. Vibrant colors stop ruminating thoughts and bring peace, a dramatic although brief period of relief.

“Favorite books.” They are important as reminders of the admiration I have for the author’s intellect and talent. Virtuosity stimulates my constricted mind.

The last index card, however, cuts to the quick; sometimes there is no comfort. This card reads, “And some times, only endurance.” Years ago I wrote that phrase with a bitter heart. But since then, I have come to agree with Dennis Brutus. Endurance has value and relies on faith, albeit unrecognized by me. It reflects a stubborn hope, for tomorrow and the tomorrows to follow.

Greetings to you and to those you love and support.

Offering True Support

gail louise Chronic/SeriousMental_Illness, Giving and Receiving Support, On Support, Parenting , , , , , , , ,

Most of us have found ourselves, at one time or another, wanting to provide a friend or relative with a listening ear… or to be a helpful sounding board; in other words, to provide support. What is present when someone is offering true support?

True support is present when the recipient feels listened to and understood. Some emotional needs have been shared and supported together. Just listening well and empathically may help someone clarify options or sort out thoughts. If you’re unsure if the support you offer is satisfactory and your intention is genuine, I suggest asking the recipient gently: Did she feel really listened to? Did he feel a lifting, even temporarily, of a burden? If yes, you have given someone a great gift!

My experience as a support group facilitator and as a trainer of facilitators, both in giving and in receiving support from people with mental illness through an adult lifetime guide me to these recommendations (Under “On Healing” in the menu bar). I hope you find them thoughtful.

Oh So Real: Pregnancy and Suicidal Depression

gail louise Depression during Pregnancy, MajorDepression, On Support, Parenting , , , , , , , , , , ,

“Oh baby,” I said, as he/she came down the birth canal, “You are born!”. It was 1979. We didn’t know the sex of the child before birth. The birthing experience was wonderful, a balm for the difficult pregnancy caused by the onset of major depression in the fourth month of pregnancy.

I was alone.

Don’t get me wrong, my husband was with me very much during the pregnancy. But I was alone with being pregnant and being ill. I knew no other woman who was or had been pregnant and seriously depressed to talk to, to compare notes, to help me express my feelings or to hug. I hope this summary of my story of the difficult pregnancy will help other mothers who find themselves struggling with similar experiences today.

If you are pregnant and depressed, you are Not alone.

Parenting, continued….

gail louise MajorDepression, On Support, Parenting, Real Life; Real Challenges , , , , , , , , , ,

Raising children, for me, while taking care of my own mental illness, was a double challenge. I was a parent before major depression, and later Bipolar Disorder II, evolved. My article on parenting (in the menus above under “Real Life, Real Challenges”) was written several years ago but this post gives me the opportunity to add to my observations.
Support should be given to them every step of the way, as needed, per individual. We love our children and want to do the best for them. Support during pregnancy check-ups; assistance at hand, if wanted, when the baby is about to be born; coordinated discharge planning when mother and baby are leaving for home; weekly in-home visits, etc.

With that in mind, here are some things I would do differently if I had the opportunity:

  • I would be less critical of family members. In fact, I think that some parenting classes can be suggested to parents with mental illness ( we’d learn the program and we’d all learn from each other) Stress techniques that would teach how to do positive reinforcement so the parent with depression/mental illness has some tools to use.
  • I would teach my children at an earlier age, in simple terms, that I had an illness and that sometimes I needed the house to be extra quiet and I had to nap because I wasn’t feeling well.
  • I/we would teach that the illness and bad feelings that I had were not the children’s fault, nor anyone’s fault.

The Quit Line

gail louise Chronic/SeriousMental_Illness, On Support, Real Life; Real Challenges , , , ,

How is tobacco dependence treated? Counseling, support, and medication for starters.  How about free?: Free coaching, free materials, and, if you need it, free medication? If you’re even thinking of quitting, call:

THE QUIT LINE

Hours:  7 am to 11 pm daily

Click the link above, or call 1-800-QUIT-NOW (784-8669)

1-877-2NO-FUME (Spanish)

1-877-777-6534 (TTY)

This free service is offered by the Center for Tobacco Research & Intervention at the University of Wisconsin School of Medicine and Public Health. Its website is excellent. Easy to use and full of great information for the smoker or the family and friends of smokers. The main menu has sections anyone can access for Researchers, Health Care Providers, Smoker, Insurer and Employer. They have information on E-cigarettes! Topics include: What happens when you quit smoking (from 20 minutes to 15 years out), helping someone else quit, cost savings, time savings, etc.  Plus There’s a list of services to help you quit and videos with quit tips, various publications, a glossary, Quit Smoking apps, and more.

Just a great resource.