Heart of Darkness

When I recently wrote my extended family to tell them I was too fatigued to celebrate our 50th Wedding Anniversary, many assumed I was fatigued because cancer had returned.

This is not so.

The fatigue is from almost overwhelming depression and anxiety.

The surgery and radiation treatment I had for cancer in 2018 was easier to bear. Recovery was smooth and linear. Support from family was heart-warming and helpful.  The pain was manageable.

My struggles with a recurrent major depression have been ongoing now for six months, with no improvement. (I am under the care of a good psychiatrist and recently started another new antidepressant.) The symptoms are more severe than I have experienced in thirty years.

Anxiety compounds the picture as it amplifies all my senses. My skin is super-sensitive to touch, sounds are all noisy (even running water from a faucet), reflections from mirrors and windows are distracting, and little pains convert to bigger pain.

What helps? We are attempting to solve the puzzle.

Quietness, completing little tasks, coloring, and listening to Jim reading to me (a 50 year tradition!), and sometimes reading on my own.

A quiet companion holding my hand is very soothing. Conversation and questions are agonizing.

Hope springs eternal? By God, let it be true.

Stubborn Hope

Endurance is a passive quality,
transforms nothing, contests nothing,
can change no state to something better
and is worthy of no high esteem;
and so it seems to me my own
     persistence
deserves, if not contempt, impatience.

Yet somewhere lingers the stubborn hope
thus to endure can be a kind of fight,
preserve some value, assert some faith
and even have a kind of worth.

Dennis Brutus, former prisoner of conscience, South Africa
From Stubborn Hope, c1978 Heinemann Educational Books, Inc., Portsmouth, NH.


I have two sets of tools to use in managing my illness. One set consists of the familiar: support of friends, family, the members of my support group, my psychiatrist, plus therapy, medication, rest, exercise, use of behavioral and cognitive techniques and calm, quiet settings.

The second set is much more personal. These “tools” are experiences in my life that provide comfort when treatment isn’t effective. I list them on a set of index cards that are always ready at hand. When I’m having trouble with obsessive negative thoughts, despair, and grinding hopelessness I read through the cards individually, with care and consideration. Most cards list a single word:

“Music,” stirring music.

“Humor.” I cannot generate humor, but at some level it reaches me.

“Beauty.” Something beautiful must be near at hand. Usually it is light falling on my favorite glass vase, an illustration, or a textured fabric. My eyes and mind are soothed. Vibrant colors stop ruminating thoughts and bring peace, a dramatic although brief period of relief.

“Favorite books.” They are important as reminders of the admiration I have for the author’s intellect and talent. Virtuosity stimulates my constricted mind.

The last index card, however, cuts to the quick; sometimes there is no comfort. This card reads, “And some times, only endurance.” Years ago I wrote that phrase with a bitter heart. But since then, I have come to agree with Dennis Brutus. Endurance has value and relies on faith, albeit unrecognized by me. It reflects a stubborn hope, for tomorrow and the tomorrows to follow.

Greetings to you and to those you love and support.